I am so thrilled that people are finding our support group on Facebook and finding our webpage too. When I started all this it was with the sole goal of connecting people with Narcolepsy and their families together and I must say I really feel that this is starting to happen.
I am planning an actual supprt group meeting for Mid November in Brisbane so I can pass on information from the conference. I am also going to make that information avaiable on our pages for everyone.
I am also hoping to start lobbying the Federal Governement to legalise Xyrem. I believe that this drug will help alot of people with Narcolepsy and that although it may not be right for everyone it is about having the option to use it as a treatment.
Thanks for reading my blog and I'll keep you updated :)