I've been doing a fair bit of work on the web page. Really trying to get the word out about Narcolepsy and try and let more people know that we are here. It's pretty exciting to think that we have connected a few people with Narcolepsy together through our facebook page. I'm still very much learning the ropes on all this technological stuff so you will all have to be patient with me.
My son is just so so at the moment some days his meds seem to work really well then other days they don't seem to work at all, but there are no other treatment options here in Australia so until something changes in that regard I suppose it will just have to do.
He started taking "Effexor" 2 months ago to see if it helped with his cataplexy and I am really thrilled to say it has made a huge difference. He has gone from 2-4 cataplexy attacks a day to vitually none at all. It's such a great thing to see :D
Still trying to get our family organised for our big trip to the USA..it's coming up really quick we fly out in 40 days!
My son is just so so at the moment some days his meds seem to work really well then other days they don't seem to work at all, but there are no other treatment options here in Australia so until something changes in that regard I suppose it will just have to do.
He started taking "Effexor" 2 months ago to see if it helped with his cataplexy and I am really thrilled to say it has made a huge difference. He has gone from 2-4 cataplexy attacks a day to vitually none at all. It's such a great thing to see :D
Still trying to get our family organised for our big trip to the USA..it's coming up really quick we fly out in 40 days!
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